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Sunday, August 3, 2008

Today was a hard day... Around 2:30 this morning Landon stopped breathing, he did not throw up and he was not crying. This is the first time he just randomly stopped breathing. Luckily Carlos was still up and sitting next to him. He started giving Landon mouth to mouth and yelled for me. I came out into the living room, and shortly after Landon started breathing and seemed to be doing better. I went back to bed and Carlos stayed with him. Then at 7:30 Landon was crying so Carlos picked him up, and Landon threw up and stopped breathing. Again, he yelled for me and he started giving Landon mouth to mouth. And Landon started breathing again. After this all happened we thought Landon was going to be ok, at least for the rest of the day. We went out to the store, and on the way home Landon started to not breath very well, he would take a breath every few seconds, but that was it. His color was not looking too great either. We got home and sat with him, his breathing was getting worse and worse. He seemed to be getting weaker, and he was so lifeless. We held him, and told him over and over how much we love him and we gave him lots of kisses. At this point, we thought we were saying good bye, we just thought he was too worn out to fight anymore. Eventually he did stop breathing. We gave him mouth to mouth and he started to breath, but not well at all. We figured we just bought ourselves a few more minutes with him. We had decided if he was to stop again, we would let him go. He has been so strong, but we don't want to make him suffer. So we continued to cuddle him and talk to him, and after a little while he started breathing again and looking like his normal self. He seemed ok. And he was ok for awhile, he had his strength again, his eye was open and he was alert. Time went by, we fed him, and then he threw up. He stopped breathing. We could not bring ourselves to not help him, even though that's what we decided. He didn't just randomly stop this time, he was choking on his throw up. So we cleared his airway and gave him mouth to mouth. And it worked, he started breathing. It didn't take too long for him to start breathing again, and return to normal. We have known since he was born that our time with him would be limited, and we know our time is now running out. We know when its time for him to go, he will, but until then we will continue to fight for him. He means everything to us, and we know we'll always want a little more time...
Laying on the couch this morning
Loving on Benny
He is so cute with his knees tucked up!
His hand holding his chest
(that's how he was when we unwrapped him from his blanket)
Another picture with Benny


3 Comments:

Blogger Kathy said...

Hi, My name is Kathy and I am Chaplin Benefield's sister. Jen has been keeping me updated on your situation since you first found out that Landon had trisomy 13. I was glad that she shared your blog site with all of us who read hers. You are amazing! I pray that God will continue to give you the strength you need and surround you with peace when it's time to let your precious baby go. My heart is heavy for you all.

August 3, 2008 at 5:46 AM  
Anonymous Anonymous said...

You two are absolutely amazing and Landon is so blessed to have two great parents. It is an honor to know two great people who set an amazing example of how we should all live with a little more greatfulness in our lifes. Erin you reading about your fight as a mother for your child gives me the strength to be a better mom everyday, and I thank you for that. I check on how landon is doing every morning and then say a prayer for all three of you. I know it sounds repeatative but I can't express how wonderful you guys are and what amazing parents you two are. Always in my thoughts and prayers, nicole

August 3, 2008 at 9:01 AM  
Blogger LoveBugZ said...

My name is Dawn and I am in Colorado and Allison told me about baby Landon. Since she has told me I have prayed and thought of you all each day. I know you hear all the time that you are amazing people who are so strong but there are no better words to describe you both. Baby Landon was given the absolute best parents I could ever imagine. Please know I pray for you each day and Baby Landon has touched my heart in a way I am not sure I could ever even describe. God's blessings on all of you!!

August 3, 2008 at 3:47 PM  

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